Thursday, June 26, 2014

There will be bumps in the road!

Well I have to say - I did not expect what the first round of chemo had in store for me so here's goes......I got my port on Monday - Tuesday (June 17th) - first treatment I was all good until that evening DIZZINESS jumped on me!   On Wednesday I had to get a booster shot for my WBC  (initials for - white blood cells) this was at UNC.  On Thursday I wake up with some kind of horrible rash, if your friend with me on FB you saw it (my boss said IT LOOKED ANGRY - after Benadryl looked better) and she was right.  Spend most of my day at the UNC clinic to figure this one out.  Still no answer at 5 that day, left came home felt like POO!  ON Friday I got up took meds and got same rash again - off we went to meet a new team of doctors (Allergy/Immunology specialists) of course I had way to many different meds in my system they at that point had no clue what it could be either.  So we scheduled an apt for the next week (Thursday).  So Friday was pretty decent, I was still dizzy and a lot nauseated but I was taking lots of meds.  Saturday rolls around WE are AT A totally different place - I was in bed all day and not responding to people when spoke to - I felt very out of touch with the world.  Let me just say I was not expecting this type of comatose!   I slept all day Saturday and people came by, prayers with me,  but I have no memory of Saturday at all.  On Sunday - the morning time I felt ok, then about lunch time I crawled back upstairs and back in bed, to where I stayed between the bathroom floor and the bed, in bed is where I stayed all day and night.  With my husband doing great at what he was doing, I just really tried to sleep this funk off.  He calls the on call doctor and asked lots of questions, she calls me in yet another medicine and he sits me down and we chat, I sleep on and off the rest of the night.  On Monday I am having some severe issues that need to be addressed with the doctor so we call, she immediately tells me I should come in - we ask more questions and decide to stay home and try to fix the problem I am having.  I need to eat and hydrate to stay home.  Being is lots of pain we tried lots of things and some worked some not.  Tuesday was a better day - still have tummy problems and dizziness - I stayed put at home again.  We are now to Wednesday and I am feeling better or prolly the best yet.  I had calls and questions with the doctors and stayed home to recoop another day.   Today brought me a Chapel Hill appt for an allergy challenge ( which btw we don't know anything) stayed there for 3 hrs.,  no rash at all!! This afternoon I went to my yearly OBGYN and had a checkup and came home feeling pretty good.   So tomorrow will be going to work, I have got to get some normalcy back.  I didn't expect CHEMO to do this to me - NOT ME!!!  I have to dig down really deep and get my mind right for the 2nd round.  Just please know that I need your prayers and positive thoughts.  I have struggled the most with seeing Gracee sad (she has been here a lot) - my heart breaks for her to see this and I know this has to be my drive to be better.  I am praying for this right now! 

Again - I want to thank you all for everything- I have had a lot of people ask WHAT CAN WE DO- I am just gotta give ideas - dinners are great if you cook I love homecooking - if you don't gift certificates (Mcdonalds, Blue Ribbon, Zaxbys, Wendy's, Hibachi) are great too. - Christina has set up a calendar sign up for food and NEEDS.  I need those people to get my girls away from here on my BAD DAYS (which seem to be treatment week FRI-SUN) ( find a way to get me I will make it work).    Thank you all for everything!!!!  I will post again in the next few days!!!!     

1 comment:

  1. The Care Calendar link is to the right of this blog. There are lots of dates with needs that can be filled! Thanks Everyone!